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The Jenga Diaries |
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Jenga was two years old on 11 November 2003. He was diagnosed as having polyneuropathy (PN) - an inherited degenerative nervous disorder - on 9 December 2003 and had tie back surgery for laryngeal paralysis (LP) the day after. A leg biopsy later confirmed the diagnosis. Jenga's account of how his condition came to be discovered is on the Leo Health page. This is his story of what happened next ... click here for the latest or alongside for earlier months.
2004
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